Establishment of Database in Neonatal Medicine – the Malaysian National Neonatal Registry
Paediatric Institute, Kuala Lumpur Hospital, Malaysia
The Malaysian National Neonatal Registry (MNNR) was piloted in 2002 and established in 2004 commencing with data input from 24 NICU’s from Ministry of Health (MOH) hospitals. Our registry has progressed to having 44 NICU’s as source data producers, including NICU’s of 2 university hospitals and 2 private hospitals. Support given by the MOH, commitment from steering committee members and NICU nurses and good IT support are some of the important factors required for the establishment and maintenance of the registry. Entry criteria for the MNNR are focused on critically ill babies and short term outcome of babies below 32 weeks gestation. Data variables, such as hypoxic ischaemic encephalopathy. were reviewed annually for term infants to obtain data for 3 years at a time.
In 2016, out of 302,540 livebirths, 14668 cases were entered into the MNNR. The survival rate of ELBW has increased from 48% in year 2006 to 58% in 2016 , and for those VLBW between 1000- 1499 gm birth weight, the survival rate has improved from 74% to 90% over the same ten years. With increasing survival, the incidence of chronic lung disease of prematurity amongst survivors has increased from 15 to 35%. Other morbidities of prematurity will be presented.
As a consequence of the MNNR, there is more networking, benchmarking and sharing of good care practices. Data from the MNNR is analysed to show the local impact of changes in quality improvement activities and to allow benchmarking.
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